The CAUSE

The Cause

Help us in The Fight against ALS

There are significant costs associated with this journey, but we are paying for our own racing project with the help of our technical partners and private sponsors.

However, we hope that our trip and our story inspire others to buy a few miles as well. Not for our journey, that’s entirely on us, but for someone else’s journey.

Buy miles for the journey of the roughly 6,000 people in the US each year who are diagnosed with ALS.

Buy miles for the friends of ALS patients so that they can share a few more meals, a few more drinks, and a few more laughs.

Buy miles for the family of these patients and allow them to take one more trip with their loved ones.

Donations will go directly to the ALS Association Golden West Chapter which is leading the way in global research and providing assistance for people with ALS across the nation.

The mission of The ALS Association is to lead the fight to treat and cure ALS through global research and nationwide advocacy, while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

We think that’s a pretty worthy mission, and hope that you will as well.

What is ALS?

Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

There is currently no cure for ALS, but researchers are making progress every day which can allow ALS patients to live longer and more comfortably. The disease can be more aggressive, such as it was for Gilles, or work more slowly paralyzing patients over the course of a few years. Unfortunately, the medical equipment and treatments that patients need can be very expensive, and even with medical insurance, the financial toll that the disease takes can rival the emotional one.

The ALS Association supports patients and their families throughout this devastating process, and they also fund research that will help patients and their families in the future. We encourage you to donate to The ALS Association by clicking on their logo below.

2 thoughts on “The CAUSE

  1. joe battaglia

    have a Q? what do you do with the boat after your trip. do you use it for anuother trip or do you sell them or do you give them away.

    Reply
    1. Matt

      It’s Charley’s boat, so he might have a better answer, but I know he takes it out sailing all the time. I don’t know if there are any plans to do a race as big as this one again in that boat, but it gets lots of use. Plus, it’s the emergency apartment for the entire crew in case our wives ever get fed up with our sailing obsessions.

      Reply

Leave a Reply

Your email address will not be published. Required fields are marked *